Chapter 20: Well, shit.

So when things can’t get any worse, turns out they really can. How one person can have such colossally awful bad luck is beyond me, but here I am.

The weekend before last we decided to take a last-minute trip to Devon to take advantage of the unexpected February sunshine, which was lovely, but in typical fashion included 1/4 of my days in A&E at Torbay Hospital. They were nowhere near as concerned as my local hospital would have been, which was very strange, but each NHS trust operates by different guidelines and who am I to tell them how to do their job.

Whilst away I started to notice some pain in my lower abdomen again, a pain I knew only too well which niggled at the back of my mind and took over most of my daily thoughts. When you know you just know. We arrived back home from Devon at 1am Wednesday morning, and after about 3 hours sleep I awoke feeling pretty awful and with a fever of 38.1, so off we went again to my local A&E. They admitted me for antibiotics (standard procedure) and planned a CT scan for the following day.

Friday morning we received the news that I knew was coming. This second attempt at chemotherapy has not been working. One of the consultants described it as each dose of drugs temporarily shrinking the tumours (enough for it to look like a ‘good response’ on a CT scan, as shown 6 weeks ago) but then the cancer growing back larger than before between each dose; to the point now where it has increased considerably and spread to my liver (and other places I don’t particularly want or need to know about).

So the question is what now?

Tomorrow I have a meeting at the QE in Birmingham to discuss and find out more about the new CAR-T therapy that I am now eligible for, having failed two lines of chemotherapy. It’s clear at this point that chemo is not going to work, which is just as well because they are running out of drugs to try on me! Up to and including this point I have had a total of 12 different drugs, across 3 different regimes thrown at me, and after nearly 12 months of chemotherapy, my body is slow to recover now. So slow. But this new treatment isn’t chemotherapy, it’s immunotherapy, so there is still hope.

I will do another update later on this week once I have a bit more information and I know a bit more of what the plan is, right now I have to think about dragging my cancer-ridden arse off the sofa to get ready for a meal tonight with my cancer sistas!

Once again, please keep your ‘I’m sorry’s and your ‘sympathies’ to yourself; they don’t help anything, especially not me!

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4 thoughts on “Chapter 20: Well, shit.

  1. Thank you for the update. I had seen a few of your Mums Facebook posts of places you have been visiting so was thinking things must be getting better! All I can say is good luck in Birmingham and I will await the next update. 😊 Have a good time with your cancer sisters xx

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  2. No sorries, no sympathies but the HUGEST hug is coming your way. Xx

    On Tue, 5 Mar 2019 at 14:40, Life With Non-Hodgkins Lymphoma wrote:

    > lucy_v_lymphoma posted: ” So when things can’t get any worse, turns out > they really can. How one person can have such colossally awful bad luck is > beyond me, but here I am. The weekend before last we decided to take a > last-minute trip to Devon to take advantage of the unexpe” >

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  3. Hi Lucy!! I’m one of your Aunt Sara’s friends – and just want to let you know that you have been in my prayers from the start and will be praying for you even more. Fight girl – as hard as it is – as tiring as it is…please keep fighting. Something will come along and work, just need to find it. Bless you! You have a LARGE support system.

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